Today is MPS Awareness day. Go here to read a little about it. Go here to see how it affects a family with two kids who have it. I read this family's blog because it reminds me of so many of the MDS (multiple disability support) kids I have worked with in the past. I have only worked with a few who have degenerative diseases but they are such sweet kids.
In anycase as a Mom it is unimaginable for me to think of my sweet little girl going backwards in her skills as kids do with this kind of disorder. I am so lucky.
So please read a little bit about this disorder.